“A
Whole Lotta Shakin’ Goin’ On: the PD Narrative Project”
at
JUNE
6-8 2013
WELCOME
TO THE RHIZOME:
This word pops up repeatedly in this post, so allow me to explain it a
bit: a rhizome is a particular kind of logic that
uses the metaphor of the shallow surface roots of a spreading plant
(think crabgrass and irises) where there is no beginning or end (no
cause, no cure – sound familiar?), and that ceaselessly combines referents from everyday life, science, pop culture,
and so on. It’s indiscriminate and spontaneous. It’s a perfect
metaphor for PD, too, which I’ll discuss in a later post.
Preparing
for an academic conference is a taken-for-granted process that,
especially for someone with Parkinson’s Disease, entails a lot of
planning, reliance on a team of supporters, and crazy luck. The
stress can be considerable. The team members mentioned in this post
include graduate students from my Qualitative Research class who are
presenting their very first conference papers, which is a very big
deal – there is a rigorous review/selection process at EQRC:
Jen Bell, whose research is on the British TV show, The Inbetweeners and its US remake;
Jen Bell, whose research is on the British TV show, The Inbetweeners and its US remake;
Mohammad
Ala Uddin, from Bangladesh,
on breaking gender stereotypes in BBC Janala’s English-language
program;
Benedine Azanu, from Ghana, on media depictions of African women leaders;
Karim Farhat, from Lebanon, on images of terrorism;
Danielle Echols, from Chicago, on how history gets re-written;
Kelly Choyke, on paranormal romance readers, and
Yan Zheng, who’s been my assistant on The PD Narrative Project since 2011.
Other players in this post are Sam and Ben, the newest undergrad members of The PD Narrative team.
Anyway, here's whatwent wrong
happened (nothing goes “wrong” in a rhizomatic chain of events;
things just happen) on the way to Cedarville
(about 3 hours west of Athens, over by Cincinnati).
Benedine Azanu, from Ghana, on media depictions of African women leaders;
Karim Farhat, from Lebanon, on images of terrorism;
Danielle Echols, from Chicago, on how history gets re-written;
Kelly Choyke, on paranormal romance readers, and
Yan Zheng, who’s been my assistant on The PD Narrative Project since 2011.
Other players in this post are Sam and Ben, the newest undergrad members of The PD Narrative team.
Anyway, here's what
WEDNESDAY: PRELUDE TO THE CONFERENCE
Sam
has half-assed the PowerPoint revisions for the conference, promising
to get them back to me by 2, then 7, then 9pm with an inexplicably
photo-shopped cover slide with “Parkinsins” and “Micheal J Fox”
misspelled. I am somehow
unable to fix this. Alarmed by Sam's carelessness, I am reminded how
much I rely on the team members I’ve come to trust.
THURSDAY, June 6
THURSDAY, June 6
LATER
THAT AFTERNOON
Exchange
my little red car for a behemoth university vehicle, and go shopping
for provisions in a massive downpour.
Ali (my husband) urges me to abort scheduled evening voyage because of thunderstorms, darkness, traffic and PD-anxiety. My relief is palpable when I finally agree, and text the crew about revised departure plans. There’s a twinge of guilt, as every PwP knows, but that’s the way it goes.
Ali (my husband) urges me to abort scheduled evening voyage because of thunderstorms, darkness, traffic and PD-anxiety. My relief is palpable when I finally agree, and text the crew about revised departure plans. There’s a twinge of guilt, as every PwP knows, but that’s the way it goes.
Of course, the weather clears up immediately! I spend the evening fine-tuning the presentation, adding notes and rearranging slides (maybe a little executive dysfunction goin' on?); everything’s on the flashdrive (cleverly named NO NAME), ready to go!
FRIDAY
MORNING – ON THE ROAD
One
last PowerPoint remix and we’re off to Cedarville!
Pick up Ala from Grad Lounge and Yan from River’s Edge.
An hour into the 3-hour drive, Yan and I decide to practice the PowerPoint in the car.
“Won’t this be fun,” I think, “driving and dictating.”
Rhizome-in-motion at 70 mph on Route 50 West.
Pick up Ala from Grad Lounge and Yan from River’s Edge.
An hour into the 3-hour drive, Yan and I decide to practice the PowerPoint in the car.
“Won’t this be fun,” I think, “driving and dictating.”
Rhizome-in-motion at 70 mph on Route 50 West.
As
we wax semiotically about the various designations for
USB/external/thumb/flashdrives, the
actual referend refuses to appear on my laptop. Or
maybe the referend is there, but its signifier
isn’t.
It doesn’t appear on Yan's laptop, either. Or Ala’s.
Yan calls Ali, who step-by-steps its recovery:
It doesn’t appear on Yan's laptop, either. Or Ala’s.
Yan calls Ali, who step-by-steps its recovery:
“Scroll
down til you see No Name.”
“Ok! There is no No Name.”
“You found it?” (everyone's kinda shouty now: speakerphone syndrome plus stress...)
“No, No Name is not on the list of icons!”
“But is there a No Name . . .”
You get the idea: Who’s on First.
“Ok! There is no No Name.”
“You found it?” (everyone's kinda shouty now: speakerphone syndrome plus stress...)
“No, No Name is not on the list of icons!”
“But is there a No Name . . .”
You get the idea: Who’s on First.
At
any rate, NO NAME is NOWHERE.
All (data) is lost.
What the fuck happened? An irrelevant question at this point.
All (data) is lost.
What the fuck happened? An irrelevant question at this point.
Route 50 is flat now. There is no cruise control on the university vehicle.
We go into hyper-drive, scouring and scavenging from previous versions of the Prezi that Yan has saved, thanks to Ala finding us internet access via my phone, which I clearly do not have the semiotic resources to use properly. We congratulate ourselves on our collaborative capabilities.
Note to self: do not jinx the rhizome by turning its tactical function into strategy.
Double-take on Ala; he doesn’t know this yet? A first-year MA student from Bangladesh is probably not brunching it at the Bob Evans on a regular basis.
Never mind, he knows more than we do.
We talk about how eggs are prepared/served/eaten in China, Bangladesh, Morocco, Vietnam.
I invoke Claude Levi-Strauss’ The Raw and the Cooked for good measure, because I can.
So we get misdirected somewhere on I275, I71, Rt. 52/72; it’s now become a 4-hour tour (CUE Gilligan’s Island music) and Ala’s presentation is scheduled to begin in less than 30 minutes.
We call Ali again, who recommends different directions from those that the conference has provided. When faced with the choice between oral suggestion (from my husband) and visible printed map (from conference organizers), I choose the latter.
Note to self: never do this again.
We pass by our hotel in Xenia (no change of clothes for you, Ala!) and end up doing a circle on Route 42; Ala is reporting all of this from the backseat with the GPS app.
We
finally arrive. Ala checks the room where he will be presenting. There is no internet access, and the conference organizers
categorically refuse to allow it, on the grounds that its absence
enables us to “concentrate on our presentations.” LOL. Given
what we’ve been through, that’s patently absurd.
We are living in parallel universes.
I have now abandoned my “mentor” job description, and explain to Benedine (on same panel as Ala) that I am unable to attend because of technical difficulties of my own. I feel guilty, but the show must go on!
We are living in parallel universes.
I have now abandoned my “mentor” job description, and explain to Benedine (on same panel as Ala) that I am unable to attend because of technical difficulties of my own. I feel guilty, but the show must go on!
Yan
and I sequester ourselves in an alcove and review our PowerPoint
choices. Each one has a different emphasis, goes off in different
directions; we finally choose The Video Game version, and make some
changes.
Ok, done! We’re finally ready!
Ok, done! We’re finally ready!
I
check the conference program description of my paper.
--
double-take -- what the fuck?!I promised a paper about the ethnographic process of making the PD Narrative videos? Not the mainstream media representations of PD?
When on earth did I write this?
It doesn’t matter, because the presentation is scheduled to begin in 5 minutes.
I throw up my hands and surrender to The Rhizome (and probably some executive dysfunction).
Yan
and I arrive in the presentation room to discover that the audio is
not working, which is sort of the whole point of the videos. While two
tech people try to solve this, Presenter #3 graciously agrees to go
first. Presenter #2 is a magic no-show (thank you!), which give us 15 minutes to
kill while another grim-faced techie is called in.
So I answer questions about -- get this -- something the audience has not yet seen, which is so rhizomatic that I have to mention it when someone asks what rhizomatics is.
So I answer questions about -- get this -- something the audience has not yet seen, which is so rhizomatic that I have to mention it when someone asks what rhizomatics is.
The
moderator tells some jokes.
I consider re-enacting the video with sock puppets.
I consider re-enacting the video with sock puppets.
And
consider the rhizome.
The audio blasts from the speakers; it’s working! I talk about how we made “Jenny’s Radar” and “Chuck’s Truck.” No PowerPoint needed after all, heh heh. It’s a rousing success! People are interested in learning more about PD, about video ethnography, about Chuck!
I am so happy.
Everyone else’s presentations go well, too. I am proud of everyone for rising to the occasion and doing something that, back in February, they thought was impossible.
We
have a communal lunch with the other 150 conference participants.
SATURDAY
AFTERNOON – POST-CONFERENCE
The return
drive to Athens is much shorter; isn’t there some existential
temporal rule about this phenomenon?
Yan asks if
she can put the hours she’s spent with me on the payroll.
“Of
course!” I say, because really, what would I have done without her? She rose to
every challenge, assisted me without complaint or condescension.
Yan will
disappear (aka graduate) at the end of this month.
Just like Camilo disappeared at the end of May.
Just like Camilo disappeared at the end of May.
And
countless others before them.
The rhizome
reminds me, again, of the bottom line,
of becoming rhizomatic.
of becoming rhizomatic.
Everyday heroes. :-). Wonderful reporting! Thank you.
ReplyDeleteIt was so much fun reading our story! The ending sounds a little sad though. I am not disappearing :-D...I will always be there for you and the team, Jenny! :-)))))
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